Reliable resources
CANCER ORGS | ADVOCACY GROUPS
Compiled by members of the GlobMob – International Lobular Breast Cancer Advocates September 2023. Outdated info? Missed info? Please send updates to dianemapes@gmail.com
| Name | Twitter/X | Linked In and/or websites |
| After Breast Cancer Diagnosis – UK (Resources and MBC Retreats in the UK, run by MBC patient advocate Jo Taylor) | @abcdiagnosis | https://www.linkedin.com/company/abcd-after-breast-cancer-diagnosis/ |
| After Breast Cancer Diagnosis – US (One-on-one or phone support, 1-800-977-4121, + webinars and mentor training for patients and caregivers in the US) | @ABCD_mentor | https://abcdbreastcancersupport.org/
|
| Alamo Breast Cancer Foundation Non-profit focusing on breast cancer and founder of the San Antonio BC Symposium | @abreastcancer
| https://www.alamobreastcancer.org/
|
| American Cancer Society | @AmericanCancer
| www.cancer.org
|
| Breast Cancer Research Foundation | @BCRFcure | https://www.linkedin.com/company/the-breast-cancer-research-foundation/ |
| BreastCancer.org National nonprofit founded by BC oncologist that provides information, resources & a huge online community | @Breastcancerorg | https://www.linkedin.com/company/breastcancer.org/ |
| BreastCancerTrials.org National nonprofit providing up-to-date clinical trial information and more | @BCTrials
| https://www.linkedin.com/showcase/bctorg/about/ |
| Canadian Breast Cancer Network
| @CBCN
| https://cbcn.ca/ |
| Canadian Cancer Society | @cancersociety | https://cancer.ca/en/cancer-information/cancer-types/breast |
| Canadian Cancer Survivor Network | https://survivornet.ca/ | |
| Cierra Sisters Seattle-based Black cancer support group run by Bridgette Hempstead | @cierrasisters | www.Cierrasisters.org
|
| Chrysalis Initiative National nonprofit dedicated to eliminating health disparities | @chrysalisinit | https://thechrysalisinitiative.org/ |
| Dense Breast Info | @DenseBreastInfo | https://www.linkedin.com/company/densebreast-info-inc-/ |
| European Lobular Breast Cancer Consortium | @elbcc | https://www.linkedin.com/company/elbcc-lobsterpot/ |
| The FDA U.S. Food & Drug Administration | @US_FDA | https://www.fda.gov/ |
| FORCE Facing Hereditary Cancer Empowered – national nonprofit | @FacingOurRisk | https://www.linkedin.com/company/force-facing-our-risk-of-cancer-empowered/ |
| For the Breast of Us BC support for BIPOC patients | @thebreastofus | www.breastofus.com |
| GRASP Cancer Guiding Researchers & Advocates to Scientific Partnership – national nonprofit run by MBC patients Julia Maués and Christine Hodgdon | @GRASPtweets | https://www.linkedin.com/company/graspcancer/ www.graspcancer.org |
| Imerman Angels One-on-one cancer support for cancer patients, survivors, previvors and caregivers – 1-877-274-5529 | @ImermanAngels
| https://imermanangels.org/
|
| Inspire Huge online patient community for cancer and other diseases | @InspireIsHealth | Inspire.com |
| Living Beyond Breast Cancer | @LivingBeyondBC | https://www.linkedin.com/company/living-beyond-breast-cancer/ |
| Lobular Breast Cancer Alliance | @LobularBCA | https://www.linkedin.com/company/lobular-breast-cancer-alliance/ |
| Lobular Breast Cancer UK | @LobularBCUK | https://www.linkedin.com/company/lobularbcuk/ |
| Lobular Ireland Network of ILC researchers, patient advocates, clinicians, etc. | @LobularIreland | https://lobularireland.com/
|
| Metastatic Breast Cancer Alliance An alliance of organizations, industry partners and advocates focused on metastatic breast cancer | @MBCAlliance | https://www.linkedin.com/company/metastatic-breast-cancer-alliance/ |
| Metastatic Breast Cancer Network | @MBCNBuzz | https://mbcn.org/ |
| Metastatic Breast Cancer Project Large national patient-engaged research project focused on MBC, part of Count Me In | @MBC_Project | https://mbcproject.org/ |
| Metavivor Nonprofit founded by MBC patient advocates that exclusively funds MBC research | @metavivor | https://www.linkedin.com/company/metavivor-research-and-support-inc/ |
| National Breast Cancer Coalition | @NBCCStopBC | https://www.linkedin.com/company/national-breast-cancer-coalition/ |
| National Breast Cancer Foundation Nonprofit founded by BC survivor | @NBCF | www.NationalBreastCancer.org |
| National Cancer Institute (NCI) | @theNCI
| www.cancer.gov |
| National Comprehensive Cancer Network U.S. alliance of cancer centers – produces evidence-based guidelines for treatment | @NCCN | https://www.nccn.org/
|
| National LGBT Cancer Network | @cancerLGBT | https://cancer-network.org/ |
| Rethink Breast Cancer | @rethinktweet | https://rethinkbreastcancer.com/ |
| SHARE Cancer Support | @SHAREing | https://www.linkedin.com/company/share-cancer-support/ |
| Susan G. Komen Foundation | @SusanGKomen | https://www.linkedin.com/company/susangkomen/ |
| Tiger Lily Foundation Support for Black women with BC | @tigerlilycares | https://www.tigerlilyfoundation.org/ |
| TOUCH: The Black Breast Cancer Alliance | @touchbbca | https://www.linkedin.com/company/touchbbca/ |
